I was hoping after my last update from being away I would have continued to blog regularly, however life decided to throw me a curve ball that has completely changed my life. I will not go into too much detail as its been a long journey up until this point, but I will explain what has been happening over the past 6 months.
I started my new job in June and all was going well until I started getting a funny sensation in my hips – it sort of felt like my legs were numb but I could still feel if they were touched – this sensation then spread down my legs to my feet and up my torso to around the level of my belly button. I was referred by my GP to the Medical Assessment Unit and then a Neurologist at my local hospital. They ordered an MRI, blood tests and Evoked Potentials tests to investigate what was causing my symptoms. During this time I was signed off work, fell down the stairs which caused a concussion, and started feeling extremely fatigued. I also found out I was vitamin B12 deficient so started having B12 injections to try and increase the levels of the vitamin in my body.
Coming up to three years ago I was diagnosed with Fibromyalgia so it was not unusual for me to feel fatigued or experience increased levels of pain, but the fatigue I started feeling was stopping me being able to do most daily activities – unfortunately, including blogging.
In January this year I went back to see the Neurologist after she had received all of my test results and she diagnosed me with Myalgic Encephalopathy (ME or Chronic Fatigue Syndrome) alongside my Fibromyalgia, which explains why my levels of fatigue have increased. She also advised that research has shown that patients with Fibromyalgia, Depression, IBS etc (the list was long) are more susceptible to experiencing unexplainable neurological symptoms, which explains the strange sensation I have in my legs. Now that the medical professionals and I know what is causing my symptoms we are working together to try and improve how I am feeling.
I am still learning to adjust to my new diagnosis – I had not really adjusted to my Fibromyalgia diagnosis – and I am receiving help with this, so hopefully when I start feeling more myself I will be able to get back to doing everything I want to do. For now I am not going to give myself a blogging schedule but I will be writing and posting as much as I can when I am feeling well.
Thank you to everyone who is still following me and for the support I have received from fellow bloggers.